To provide for increased research and initiatives related to bleeding disorders in underserved populations, and for other purposes.

[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H.R. 8794 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. R. 8794 To provide for increased research and initiatives related to bleeding disorders in underserved populations, and for other purposes. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES May 13, 2026 Ms. Johnson of Texas (for herself, Mr. Wilson of South Carolina, and Ms. McBride) introduced the following bill; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ A BILL To provide for increased research and initiatives related to bleeding disorders in underserved populations, and for other purposes. Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, SECTION 1. SHORT TITLE. This Act may be cited as the ``Fostering Effective Diagnosis and Treatment for Underserved Populations with Bleeding Disorders Act of 2026'' or the ``FED UP with Bleeding Disorders Act of 2026''. SEC. 2. FINDINGS. Congress finds the following: (1) Current data estimates that as many as 1 percent of women in the United States may have a bleeding disorder, and many are unaware of their condition. (2) Women have reported delays in diagnosis of 16 years or more. (3) Increasing timely diagnosis for women with von Willebrand disease aligns with public health goals outlined in Healthy People 2030 supported by the Department of Health and Human Services Office of Disease Prevention and Health Promotion. (4) Without diagnosis, women cannot receive proper care and treatment from a provider with the requisite expertise, such as a hemophilia treatment center, which provides specialized care for people with bleeding disorders. Mortality rates and hospitalization rates for bleeding complications from hemophilia are 40 percent lower among all people who receive care in