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Neutral Bill Mar 16, 2026

HEALTH DATA PRIVACY ACT

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending p

https://legiscan.com/IL/bill/HB3494/2025
Mary Beth Canty State Representative Anne Stava State Representative Cosponsor Kelly Cassidy State Representative Cosponsor Barbara Hernandez State Representative Cosponsor Camille Lilly State Representative Cosponsor Kam Buckner State Representative Cosponsor Tracy Katz Muhl State Representative Cosponsor Maura Hirschauer State Representative Cosponsor Will Guzzardi State Representative Cosponsor Theresa Mah State Representative Cosponsor Janet Yang Rohr State Representative Cosponsor Margaret Croke State Representative Cosponsor Nabeela Syed State Representative Cosponsor Dee Avelar State Representative Cosponsor Kevin Olickal State Representative Cosponsor Anna Moeller State Representative Cosponsor Laura Faver Dias State Representative Cosponsor Katie Stuart State Representative Cosponsor Marcus Evans State Representative Cosponsor Rita Mayfield State Representative Cosponsor Diane Blair-Sherlock State Representative Cosponsor Jen Gong-Gershowitz State Representative Cosponsor Robyn Gabel State Representative Cosponsor Lisa Davis State Representative Cosponsor Mike Crawford State Representative Cosponsor Norma Hernandez State Representative Cosponsor Jay Hoffman State Representative Cosponsor Lisa Hernandez State Representative Cosponsor Stephanie Kifowit State Representative Cosponsor Nicolle Grasse State Representative Cosponsor
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