Newborn Screening Saves Lives Reauthorization Act of 2025

[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H.R. 4709 Introduced in House (IH)] <DOC> 119th CONGRESS 1st Session H. R. 4709 To amend the Public Health Service Act to reauthorize certain programs under part A of title XI of such Act relating to genetic diseases, and for other purposes. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES July 23, 2025 Ms. Morrison (for herself, Mr. Simpson, Ms. Schrier, and Mr. Langworthy) introduced the following bill; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ A BILL To amend the Public Health Service Act to reauthorize certain programs under part A of title XI of such Act relating to genetic diseases, and for other purposes. Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, SECTION 1. SHORT TITLE. This Act may be cited as the ``Newborn Screening Saves Lives Reauthorization Act of 2025''. SEC. 2. IMPROVED NEWBORN AND CHILD SCREENING AND FOLLOW-UP FOR HERITABLE DISORDERS. (a) Purposes.--Section 1109(a) of the Public Health Service Act (42 U.S.C. 300b-8(a)) is amended-- (1) in paragraph (1), by striking ``enhance, improve or'' and inserting ``facilitate, enhance, improve, or''; (2) by amending paragraph (3) to read as follows: ``(3) to develop, and deliver to parents, families, and patient advocacy and support groups, educational programs that-- ``(A) address newborn screening counseling, testing (including newborn screening pilot studies), follow-up, treatment, specialty services, and long-term care; ``(B) assess the target audience's current knowledge, incorporate health communications strategies, and measure impact; and ``(C) are at appropriate literacy levels;''; and (3) in paragraph (4)-- (A) by striking ``followup'' and inserting ``follow-up''; and (B) by inserting before the semicolon at the