DeOndra Dixon INCLUDE Project Act of 2025

[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H.R. 3491 Introduced in House (IH)] <DOC> 119th CONGRESS 1st Session H. R. 3491 To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES May 19, 2025 Ms. DeGette (for herself, Mr. Hudson, Ms. DeLauro, Mr. Cole, Ms. Norton, and Mr. Stauber) introduced the following bill; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ A BILL To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes. Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, SECTION 1. SHORT TITLE. This Act may be cited as the ``DeOndra Dixon INCLUDE Project Act of 2025''. SEC. 2. DEONDRA DIXON INCLUDE PROJECT. Part B of title IV of the Public Health Service Act (42 U.S.C. 284 et seq.) is amended by adding at the end the following: ``SEC. 409K. DOWN SYNDROME RESEARCH. ``(a) In General.--The Director of NIH shall carry out a program of research, training, and investigation related to Down syndrome to be known as the `INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project' or the `INCLUDE Project'. ``(b) Program Elements.--The program under subsection (a) shall include-- ``(1) high-risk, high-reward research on the effects of trisomy 21 on human development and health; ``(2) promoting research for participants with Down syndrome across the lifespan, including cohort studies to facilitate improved understanding of Down syndrome and co- occurring cond