Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act

[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H.R. 5355 Introduced in House (IH)] <DOC> 119th CONGRESS 1st Session H. R. 5355 To direct the Secretary of Health and Human Services to carry out activities to promote screenings for liver diseases in newborns, and for other purposes. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES September 15, 2025 Mr. Costa (for himself and Ms. Van Duyne) introduced the following bill; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ A BILL To direct the Secretary of Health and Human Services to carry out activities to promote screenings for liver diseases in newborns, and for other purposes. Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, SECTION 1. SHORT TITLE. This Act may be cited as the ``Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act''. SEC. 2. FINDINGS. Congress finds that-- (1) the life of California teenager Ian Kalvinskas--who received a liver transplant, fulfilled his goal of interning on Capitol Hill, and died from cancer on June 27, 2025-- demonstrates the urgent need for earlier detection of pediatric liver disease, lifelong follow-up, and wider access to donor organs; (2) pediatric primary liver tumors are among the fastest- rising childhood cancers in the United States, with hepatoblastoma increasing by approximately 2 percent per year to and now approaching 1.7 cases per million children; although the overall 5-year relative survival rate from a pediatric primary liver tumor is about 77 percent, survival falls below 60 percent for adolescents and for tumors diagnosed with distant metastases; (3) biliary atresia, a neonatal malformation of the bile ducts occurring in roughly 1 in 12,000 live births and the leading indication for infant liver transplantation, s